not taking bottle

Srikar stopped taking bottle from last week. His swallow test today came out to be normal, and nobody could explain us why he is not taking bottle. When we gave him some puree he took it. He did not have any fevers from last two days which is very exciting.He had seizures three times today. He had one when the neurologist is checking him. He might get an EEG tomorrow to check where the seizures are originating. I hope he is not getting them from his good side. Just when we think things are starting to improve, we go backwards again. He is sleepy most of the time from last few days. He looks very very tired.
Since his swallow test came out normal, we might go home sometime this week with a feeding tube.
We are tired ,exhausted and badly want to go home. We are hoping he will feel better once we go home.