infection

Srikar is having fever for the last few days. He is having high fever from today.
Yesterday he had Lumbar Puncture to check for any infection. But the fluid did not show of any infection. His white blood cell count is also very high, for a few days. His blood test result came out to be normal. But till now they are not able to find out what infection he might be having. He had a CT scan done few hours ago. we are waiting on the results.

His staples were removed yesterday. He still has the fluid in his head on the left side.

Please pray for Srikar that his fever and infection goes away pretty soon.

out of PICU

Srikar is out of PICU today morning. His sleep timings are really messed up. He is sleeping all day and kind of awake during night. We tried to feed him through bottle today to check if can take food by mouth. He did fine with the bottle. We will try to give him more feeds through bottle tomorrow. He is trying to cry whenever he is uncomfortable, but he is not able to do becasue of hoarse voice due to the breathing tube. So we are not able to know how he doing with the pain.

waiting to leave PICU

Srikar was more awake today evening. He was trying to chew his left hand, (due to teething) which he is used to do before the surgery. He was moving his left hand and leg . He is moving little bit of his right hand and leg. He looks very very tired though. We are supposed to leave the PICU today, but waiting for a bed to become available in the other floor.

shaking

We had concerns yesterday about Srikar's shaking and tremors. Yesterday evening I noticed that Srikar was shaking his good hand (left hand). Initially I thought he might be cold and covered him. But later I saw his hand still shaking and he is lip smacking and lightly raising his eyebrows. We are concerned and let the PICU doctor know this. He said that it might be seizures or might be shaky due to sedation for long time. Today morning we discussed this with Neuro surgeon and Neurologist and both of them assured that, this is due to the brain healing and rewiring process.They are expecting more shaking for few more weeks. We are relieved to know that these are all part of brain healing process.

Otherwise Srikar is doing good and we might be out of PICU tomorrow.

Drain tube is out

Srikar had his drain tube removed this evening from his head.
He got very nasty skin rashes on his cheeks and forehead due to the bandages used to hold his breathing tube and head. Looks like his rashes are irritating and he is using his left hand to rub on it.
If Srikar takes it well we might be out of PICU in a couple of days.

breathing tube is out

Srikar is recovering slowly. His breathing tube was removed today. He opened his eyes yesterday, but looked very drowsy. Today he is little more awake, but still very very sleepy.
The wrap around his head was removed this morning, and we can see the incision and staples. We had a hard time looking at his incision and staples. The drain from his head will be removed soon.

Thank you all for your prayers and continue to keep him in your prayers.

04/20 Update

Today Srikar seemed to be more like Srikar. Swelling on his face is reduced by a considerable amount. His bed is raised to an angle of 35 degrees. He is sticking his tongue a little bit out (He always used to do that at home). His cheeks are still a little swollen. He is moving his left hand alot. They have reduced his sedation and they are planing to remove his air tube by tomorrow. And they are also thinking to wake him up tomorrow. They started to feed him the formula again today. Dr. Vining came by to check on him in the evening.

We also received a package from "The Hemispherectomy Foundation" for Srikar. Thank you for praying for Srikar's recovery and well being. Coincidentally its his 10th month B'day today. Hopefully he will cut his cake in a couple of days.